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10 Insights Gained from My Breast Cancer Journey
By: Sarah Johnson
Updated: Oct. 13, 2020
Originally Published: Oct. 14, 2015
Three years ago, my life took a drastic turn from being a scientist and a stay-at-home mom to navigating the world of breast cancer treatment. The experience of chemotherapy and a double mastectomy with reconstruction revealed lessons I never anticipated. If I could chat with my newly diagnosed self, here’s what I would share:
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Modesty Takes a Backseat
You’ll find that modesty becomes a thing of the past. I’ve never been in a flash mob, but I’ve certainly given enough “flashes” to count as one! After my diagnosis, I casually shared my body’s changes with countless healthcare professionals and even some curious friends. From the port (that strange device under my skin for chemo) to mastectomy scars and, of course, my first tattoos—trompe-l’œil nipples included! -
Love Surrounds You
You’ll be amazed by the love that surrounds you. Family, friends, and even acquaintances will step up in ways that will leave you speechless. Expect meals delivered, offers to watch your kids, and surprises like cupcakes and heartfelt notes on your doorstep. Coffee dates will fill your calendar, and your mom will send you cute shoes for chemo, knowing that’s your love language. Gratitude will wash over you. -
Breast Cancer is Everywhere
Just like when you were pregnant and noticed all the other pregnant women, once diagnosed, you’ll see breast cancer awareness everywhere. During October, pink ribbons will pop up, and grocery stores will ask if you want to donate. You might feel tempted to share your story, but instead, you’ll probably just smile and say, “Thanks, not today.” -
“Immediate” Reconstruction is a Misnomer
The term “immediate reconstruction” is a bit misleading. It actually means that the process starts at the time of the mastectomy but often requires at least one more surgery in the following year. It’s a journey, not a sprint! -
Breast Comparisons Become Normal
After your surgeries, you might forget what “normal” breasts look like. What you see in the mirror could be fantastic, but it’s different from what you remember. You’ll find yourself discreetly comparing your breasts to others, hoping they don’t catch you in the act! -
Conversations Shift
You’ll find that discussions about drains, mouth sores, and nipple tattoos become commonplace. Just like new moms bond over parenting challenges, you’ll connect with anyone who has faced a breast cancer diagnosis. You might find yourself discussing these topics with neighbors, your dental hygienist, or even a stranger at a coffee shop—because when you’re bald, these things just come up. -
Cherish the Photos
You’ll wish you had taken more photos along the way. Seeing where you started compared to where you are now is a powerful reminder of your journey. Plus, pictures of you smiling with loved ones capture the love surrounding you. -
Breasts Have More Meaning Than You Realize
You may not have thought much about your breasts after breastfeeding, but their significance runs deeper. Your surgeon will tell you about the loss of sensation, and while you’ll focus on getting rid of the cancer, it’s later that you realize how much you miss those gentle touches from loved ones. -
Going Braless is Liberating
You might think you’ll stick to wearing bras, but you’ll quickly adapt to going braless. Finding the right fit can be a challenge, and soon enough, you’ll embrace every strapless and backless top you come across. You might even rock those outfits like a pro! -
Health Anxiety is Real
You’ll find that a simple headache can trigger thoughts of cancer returning. Whether it’s hip pain or a minor pimple, your mind may jump to conclusions. But eventually, you’ll adjust. There will be days when you forget to mention to a new doctor that your nipples aren’t real. Yes, you’ll be different, but you’ll learn to embrace your new self.
One of the most sobering realizations I faced is that approximately 30 percent of women diagnosed with breast cancer may develop a metastatic recurrence that can be life-threatening. While advancements in treatment are improving survival rates, it’s crucial to recognize the ongoing need for research and support in this area. For more insights, check out this informative article on medical research breakthroughs.
In summary, my breast cancer journey has taught me invaluable lessons about love, resilience, and embracing change. If you’re navigating a similar path, remember you’re not alone, and there’s a community of support ready to lift you up.