Life After the NICU: A Journey of Emotions and Everyday Moments

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After spending five intense weeks in the NICU, I found myself in a whirlwind of emotions. Here’s the truth: I’m not the best at juggling. Picture me trying to keep one ball in the air, and you’ll get the idea. I rode those elevators countless times, clutching my cooler of pumped milk, buzzing in at the entrance, sanitizing my hands, and making my way down the hallway. Each time, seeing my little one brought a wave of relief, especially when the nurses shared that he’d had a peaceful night. But it was also heart-wrenching to notice the IV that had to come out of his tiny head after every vein had been used. There were multiple failed attempts to insert a PICC line, doses of morphine, caffeine, and the constant x-rays.

It wasn’t until we finally got home that everything hit me like a ton of bricks. I was pumping around the clock, breastfeeding whenever I could, and offering bottles in between. Yet, every feeding felt like a struggle as my baby choked each time. I found myself holding my breath during those brief moments when he stopped breathing. The initial adrenaline rush from sleepless nights morphed into an overwhelming panic. It was just too much. I felt a desperate urge to escape my own skin, as if I might shatter into a million pieces. My heart raced, and what used to be simple anxiety began to feel utterly consuming. I wondered if my mind was broken; it was the only explanation I could come up with. We were okay, but I felt as though my brain had betrayed me.

Gradually, the panic transformed into a kind of emotional hangover. There was no magical moment when everything felt alright again. Some pieces still felt shattered. I often found myself grappling with guilt for feeling this way when everything was, on the surface, fine. I constantly worried that something bad lurked just around the corner, waiting for the next doctor’s visit to reveal it. Yet, in between those worries, there was just life—ordinary, everyday life, both in my head and for my baby. Rowan found his feet yesterday, and his smile could melt the coldest heart. He has the cutest crinkle in his eyes and, while he sleeps poorly, he wakes up beaming. His sister is already teaching him to roll over, and he’s figuring it out—only to let out a wail about it afterward.

Though I’m still overwhelmed, fatigued, and anxious, I haven’t magically developed an always-positive outlook. The challenges that existed before are still here, and my love for my kids is as intense as ever, albeit mixed with impatience and frustrations. At times, I still dream of escaping. I can see that the light at the end of the tunnel isn’t an approaching train, but the scenery on the other side hasn’t changed tremendously. I carry a sense of gratitude and a bit more perspective now, but mostly I’m just navigating through life as we all are.

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