I never imagined I’d be contemplating the possibility, but it seems there might actually be a way to treat my son’s condition. He has a type of dwarfism, which doesn’t mean he’s sick or that he can’t make friends or enjoy life. He’s just small, and honestly, I couldn’t be prouder to be his mom. He’s taught me that perfection comes in all shapes and sizes.
If I had learned about this potential treatment at the time of his diagnosis, my feelings might be different. Maybe. But even that’s hard to believe. I might sound like a terrible person for not wanting to change him—who wouldn’t want to help their child overcome a condition that has made the first few years of his life challenging? But I’m his mom, and being small is part of his identity. And I love him for it.
I never envisioned asking for a child with dwarfism, yet I cannot fathom changing him.
The medical field is incredible. Thanks to their efforts, my son has thrived under careful observation to ensure he remains healthy and happy. Now, there’s talk of a drug that could promote bone growth. This could mean an increase in his height and potentially alleviate many of the complications associated with dwarfism.
Yet, I remain scared.
I’m terrified of losing the little boy I adore. The thought of altering him by choice fills me with dread. If I decide to give him this drug, am I stripping away his essence? His short stature is an endearing trait that I cherish, and it has shaped many of his wonderful qualities—his perseverance, his outgoing nature, and his surprisingly loud personality. Sometimes, what we perceive as flaws are actually stepping stones to greatness, and I fear that altering him could jeopardize that.
As a mother, I’ve always felt it’s my duty to teach my children to embrace themselves—to celebrate what makes them unique. Our world is already overflowing with “fixes” intended to enhance our appearances and traits. From hair dye and teeth whitening to extreme diets and wrinkle creams, the message is often about fixing perceived flaws rather than loving ourselves as we are. This creates a confusing narrative that complicates my mission to instill self-acceptance in my son. With a child who is different, I feel even more strongly about teaching him to love himself. Why can’t we appreciate ourselves and each other for our differences?
If this drug is offered to my son, I feel like I’m playing God.
Diversity is where beauty truly lies. I never thought I’d have a child with dwarfism, yet I can’t imagine changing it. My son is perfect as he is. His physical stature may be small, but his personality is larger than life. He has stunning blue eyes and the most infectious smile. Why would I want to alter something so extraordinary?
Still, the allure of this treatment is hard to resist. My son has faced numerous tests, treatments, and appointments. A cure would mean he could reach the bathroom sink, ride a bike without special modifications, and navigate the world more easily. The potential to eliminate surgeries and complications like ear or leg surgeries is tempting—why wouldn’t I want to give him this chance for a healthier life?
But if I consider this drug for my son, I’m grappling with a moral dilemma. There may be good intentions behind the treatment, but what will he think as he grows? He might thank me now, but deep down, would he feel rejected for who he was? Or worse, would he resent me for not providing him the opportunity? This is a decision I’m fortunate to face; I know many families would do anything to be in my shoes. Yet if these shoes are on my feet, I’m filled with fear about making this choice. It’s monumental.
Fortunately, time is on my side. My son is only four, and the drug is still in the trial phase. I have time—time to educate myself, observe, and wait. Perhaps I won’t have to decide at all. But if I do, I know it will be a struggle. Yet, I also recognize how lucky I am to be on this journey.
For more insights on navigating this topic, you can check out this article, which provides valuable perspectives. If you’re looking for authoritative information, you might also want to visit Make a Mom for tips on home insemination. Additionally, Progyny is an excellent resource for anyone exploring pregnancy options.
Summary:
Navigating the decision to treat a child with dwarfism can be daunting. As a mother, the author grapples with the implications of a potential treatment that could alter her son’s identity. While the medical community offers solutions, she emphasizes the importance of self-acceptance and the beauty of diversity. Ultimately, she reflects on the complexity of motherhood and the love she has for her son as he is.