Updated: August 20, 2023
Originally Published: June 7, 2023
It seems like some parents anticipate summer as a blissful time filled with lazy days of sleeping in, sipping lemonade, and catching fireflies in the evening. But for those of us navigating life with autism, that notion feels more like an urban legend.
In our home, the summer routine doesn’t shift dramatically. Sure, there are a few changes, but they require meticulous planning. My “boss,” as I affectionately call my son, needs a clear outline of what to expect, and believe me, negotiating these adjustments can feel like a high-stakes labor dispute. And I can’t even threaten to take a vacation myself!
While many families relish those long, leisurely mornings, my little one rises with the sun—often at the crack of dawn—because that’s just how it goes in our world. Yes, we do have school year-round, and it’s not just a quirky perk. The structure is essential for my son’s development, helping him to avoid regression during the summer. And just to keep things interesting, summer school starts earlier than the regular academic year. I find myself paying homage to my coffee maker, which keeps me functioning.
A spontaneous day off? Not in this house! We’re still committed to our therapy sessions, and I must juggle all the schedule changes that come with vacations, as therapists need breaks, too. I still remember when my son’s music therapist took time off for his wife’s delivery. My initial thought? “Well, you didn’t have the baby!” Yep, that’s the reality of my thoughts sometimes.
Every winter, my partner and I get a moment of “Vacation Amnesia” and decide to plan a classic family getaway. But as I jot down my packing list, it just keeps growing! Nothing says “I love you” like whisper-yelling, “Please keep it down! Other guests are trying to sleep!” Trust me, once you take your kid on vacation, you’ll realize just how loud they can be—especially when you get that first noise complaint from the front desk. (Pro tip: Generously tipping the housekeeping staff can work wonders.)
In our home, lazy summer days are a myth. We wake up at the same hour, and I’m usually not far behind my son when it comes time for bed. Maintaining a routine is crucial for his well-being. We do snag a bit of time between the end of the school year and the start of Extended School Year (ESY), but it’s a tight window, and I have to keep him engaged. Too much downtime often leads to anxiety. Autism doesn’t take a holiday, after all.
I strive to make the summer enjoyable for him, but adjustments are necessary. When it comes to BBQs, I usually feed him before we go or bring his favorite snacks. And fireworks? Don’t even get me started; those noise-canceling headphones are a must, or my son might just try to hide from the loud sounds. As for pool parties, let’s just say you’ve never seen a mom hover quite like an autism mom does! His fascination with water paired with a fearless attitude can be a bit nerve-wracking.
While our summer days might not fit the traditional mold, this is our normal. Now, if you’ll excuse me, I need to draft a social story about the importance of sunscreen for a kiddo who struggles with the sensation of it. For more insights into home insemination and parenting, you might find this blog post helpful.
In summary, navigating summer with a child on the autism spectrum is anything but lazy. The routine remains crucial, ensuring their needs are met while trying to make the best of the season. With careful planning and adjustments, we create a fulfilling experience for our family, even if it looks different from the idyllic summer days others might enjoy.