It’s remarkable how one day can pivot your existence dramatically—a moment that can shift everything. Throughout my 33 years, I have experienced numerous such moments; however, the day I received my scoliosis diagnosis stands out as the most transformative.
You might wonder why this is significant. Scoliosis is relatively prevalent, particularly among preteen girls and young boys. According to the American Association of Neurological Services, around 3% of the population is affected, with most cases being treatable or benign. In many instances, spinal curves correct themselves naturally over time.
Yet, my case was different. I didn’t have a minor curve or a typical “growing pains” situation; I had several curves, including a pronounced bend in my lower back. My condition featured a severe 60-degree lumbar curve that required one of two interventions: either wearing a back brace or undergoing surgery. The prospect of either option was daunting. Surgery felt terrifying, and the thought of being confined to a back brace was equally unsettling. Ultimately, after consulting with my mother, we opted for the back brace—deemed the less invasive choice. My body was meticulously casted and molded, encased in a hard plastic structure that extended from my underarms to my abdomen.
However, the brace came with three cumbersome Velcro straps, necessary for adjusting it to apply pressure and restrict movement. It was a painful experience that didn’t yield the improvements we had hoped for. Instead, my condition deteriorated, with my curvature escalating to over 70 degrees. This led my doctor to recommend an 8-hour spinal surgery, which I underwent at the age of 15. They operated, inserted five screws, and affixed a long metal rod to my spine. In contrast to the brace, this surgical intervention proved effective.
Despite my scoliosis being treated, the aftermath of the surgery left lasting effects. Eighteen years later, I still grapple with discomfort and pain stemming from the procedure. I experience chronic pain that fluctuates—some days, I can barely get out of bed. My scoliosis has restricted my ability to perform specific physical activities, such as sit-ups or gymnastics maneuvers like flips and handstands (though, to be honest, I couldn’t manage those before my diagnosis either). Strangely, my scoliosis sometimes causes me to stumble, as one leg is shorter than the other, leading to trips over my own feet.
However, the most challenging aspect of living with scoliosis is not the physical pain but the emotional toll it takes. Growing up with a visible deformity subjected me to bullying and harassment during my formative years, leaving scars that remain long after the physical ones have healed. I still battle feelings of inadequacy and self-consciousness. Each day, I strive to blend in, often avoiding eye contact. While I work on this, it remains a significant part of my experience with scoliosis.
That said, scoliosis is not entirely negative. It is not a terminal condition; it can be managed and treated. While the journey may be arduous, individuals living with scoliosis can adapt and thrive. In fact, I’ve come to view my scoliosis as a blessing in disguise. It pushed me to become an active adult. I engage in weightlifting, yoga, cycling, hiking, and running—participating in 5ks, 10ks, and even half marathons. Running serves as a powerful reminder of my strength and resilience. On the pavement, I discovered not just my physical capabilities but also my courage and self-assurance.
Life with scoliosis continues to present challenges—physically, mentally, and emotionally. However, I persist. I refuse to let my condition define me; I am more than the limitations imposed by my diagnosis. And you are too.
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Summary:
Living with scoliosis presents both physical and emotional challenges. From enduring a significant spinal curvature to overcoming the psychological impacts of bullying, the journey is fraught with hurdles. Yet, it can also foster resilience and strength, leading to a fulfilling life filled with activity and purpose.