As a parent, I often reflect on the joys and challenges of raising my five-year-old son, Leo, who is navigating life with cerebral palsy. He is currently in a special needs inclusion preschool, which has been an incredible environment for him, full of supportive peers and dedicated staff. His classmates are wonderful; they compete to help him in his wheelchair and cheer him on during lunch, where his feeding therapist assists him. I often find myself forgetting the limitations his condition imposes—until birthday invitations start arriving.
Recently, I was greeted with an invitation for Leo’s classmate, Noah’s, fifth birthday party at an exciting trampoline park. My heart sank. “Have a Bouncing Good Time Celebrating Noah’s 5th Birthday at SkyZone Trampoline Park this Saturday!” it gleamed in vibrant colors. When Noah wheeled over to me, his bright eyes hopeful, asking if we would attend, my response was hesitant, “I’m not sure, buddy.”
Determined to make it work, I decided to take Leo for a trial run at the trampoline park. Though the energetic music and flashing lights were overwhelming, Leo held his composure as we navigated the scene together. With careful support, I helped him ascend the stairs to the trampolines. Despite our initial success, chaos soon ensued as excited children bounded around us. In a moment of unfortunate timing, we were knocked down, leaving us both in a heap on the floor, surrounded by the thumping beat of pop hits.
Ultimately, I had to decline the invitation with a polite note, recognizing that not every venue is suitable for us. Over the past two years, we’ve faced several similar “no” responses to parties at play gyms or swimming pools, where the sensory overload can be daunting. However, we have also enjoyed many inclusive experiences, like visits to the zoo and movie outings.
As we approach the transition to kindergarten, I want to reach out to the parents of Leo’s future classmates: Please continue to invite us to your gatherings. While we may not always be able to attend, your invitations mean the world to him. Like any child, Leo yearns for connection and inclusion. So, keep the invitations coming, and know that you’re making a difference.
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In summary, please continue extending invitations to my son, as it fosters a sense of belonging and normalcy in his life.