Autism Doesn’t Define My Child — But It Influences My Journey as a Parent

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I watch groups of children playing together at the park. They are laughing, chasing each other, and sharing stories, while their parents chat about their kids’ milestones and plan their next coffee meet-ups. But my reality is different.

Here I am, a mother sitting alone, sipping my coffee in silence. My mind is preoccupied with therapy schedules and medical appointments, tracking my son’s health, and managing the endless to-do list. I often feel like the odd one out, too hesitant to engage with the other moms who likely wouldn’t understand my unique challenges.

Every parent faces their own set of daily battles—whether it’s getting kids to tidy up or navigating the ups and downs of parenting. I understand that; being a parent is hard work. Yet, the experience of a parent like me, raising a child with special needs, is often a different kind of challenge.

I’m the mom trying to figure out what triggers my son’s outbursts, keeping meticulous notes in hopes of identifying the cause of his new behaviors. I’m the mom who has to be vigilant, ensuring my child doesn’t run into the street, oblivious to danger. I’m the one balancing therapy sessions and medical visits while constantly advocating for my son’s needs.

I lose sleep at night worrying about his future, wondering who will care for him if I’m no longer here. I find myself questioning if I’ll ever hear him say “mama” again. I’m the one fighting for acceptance and against judgment from others.

I wish life wasn’t so tough for my son. I long for kindness from those around us and for friends and family to be more understanding. There are nights when the tears just flow.

Despite everything, I cherish being a mother to my wonderful boy. He embraces each day with joy, unbothered by others’ opinions. I admire his carefree spirit as he dances without a care in the world. The sound of his laughter and his warm hugs fills my heart with love.

Autism may present challenges, but it does not define my son. He is a sweet, funny, and loving child who adores music, dancing, and enjoying life outdoors. I love him for who he truly is.

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Summary:

This heartfelt piece explores the unique challenges and experiences of being a mother to a child with autism. It highlights the emotional struggles, the advocacy efforts, and the love that defines the relationship between the mother and her son. The author emphasizes that while autism presents difficulties, it does not define her child, who is filled with joy and love.