Parents of Children with Disabilities Feel Forsaken by Schools

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In the early spring of 2020, our world faced an unprecedented challenge. As most activities came to a halt, essential services like hospitals and grocery stores remained open, but schools were ill-equipped for such a disruption. Schools and educators are the foundation of our aspirations for a brighter future for our children. But what happens when they are caught off guard by a crisis? As a parent of two school-aged kids, I can attest that the experience has been a steep learning curve for all involved. However, for families with children who have disabilities, the situation has been drastically more complicated.

While every family faced challenges during this time, those with children requiring specialized services were particularly hard-hit. Many of the essential support systems outlined in their Individualized Education Plans (IEPs) simply vanished overnight. For those unfamiliar, IEPs are designed to provide tailored educational experiences, but they often rely on in-person interactions that do not easily shift to online formats.

Transitioning from parent to part-time educator was tough for everyone, but even more so for parents of children with disabilities learning from home. It’s one thing to care for your child; it’s another to effectively teach them, a reality that many parents have felt intensely. In conversations with other parents, the word “difficult” barely begins to describe their experiences. For example, one mother named Kelly shared her heartbreak over witnessing her child, who has an intellectual disability, fall behind in their learning. Another mother, Jenna, whose son is both deaf and blind, expressed similar frustrations, noting, “He requires so much extra support just to make a fraction of progress.”

The blame does not lie with the students, their parents, or even their teachers. A special education teacher from the Midwest highlighted the significant hurdles faced during this period. “Access to technology, reliable internet, and food for families were our biggest challenges,” she explained.

A potential solution could involve increasing federal funding for special education. Given that special education relies heavily on government support, enhancing internet access for every student could help prevent similar crises in the future.

The pandemic has disproportionately affected students with disabilities, but even before 2020, there was already a notable gap between the services these students required and what they received. Since 1975, federal guidelines have aimed to ensure that all students receive a free and appropriate education. The Individuals with Disabilities Education Act (IDEA) was instituted to level the playing field for children with varying abilities. Yet, it is apparent that this system is failing when students with disabilities struggle to maintain or advance in their educational journeys.

Currently, the federal government has pledged to cover 40% of the average costs associated with special education. While this sounds promising, in 2020, they managed to contribute only 13%, marking the lowest level of support since the year 2000. Over the past two decades, they have consistently fallen short of even their 20% commitment. It raises the question: How can schools adequately support students with disabilities without the necessary funding?

Despite my usual disinterest in politics, it seems that the current administration has finally acknowledged the long-standing concerns from parents, educators, and advocates. The proposed budget for the 2022 fiscal year includes an increase of $2.7 billion for IDEA funding. It’s about time.

Education is fundamental to our society. Every child deserves access to quality educational experiences, regardless of their learning needs. It’s crucial for governors, Congress members, and senators to heed the calls from parents and educators of children with disabilities. They must honor their commitments to ensure every child’s educational quality is upheld because these children represent our future.

To educators, your dedication does not go unnoticed. Engaging students in learning can be challenging, especially when the material isn’t their preferred topic. But your commitment to fostering young minds is invaluable, and as parents, we recognize your efforts.

Parents, you are the true champions. Advocating for your children’s rights to a quality education is no small feat, and it shouldn’t be a burden you bear alone. Regardless of whether your child has a disability, ensure your voices resonate throughout your school district and beyond. Every child deserves to explore, learn, and flourish through education.

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In summary, the pandemic has highlighted the urgent need for better support and resources for children with disabilities and their families. As we move forward, it is essential to ensure that every child has access to the education they deserve, and that parents are supported in their advocacy efforts.