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In a deeply saddening announcement, NBC correspondent Richard Engel revealed the death of his 6-year-old son, Henry, who had been battling Rett Syndrome, a rare genetic disorder. Engel took to Twitter to express his grief, stating, “Our beloved son Henry passed away. He had the softest blue eyes, an easy smile, and a contagious giggle. We always surrounded him with love and he returned it, and so much more.” Engel and his wife, Mary, welcomed Henry in 2015. However, after missing key developmental milestones as a baby, he was diagnosed with Rett Syndrome at the age of 3 due to a mutation in his MECP2 gene.
Understanding Rett Syndrome
Rett Syndrome profoundly impacts brain development, affecting motor skills, muscle control, and intellectual growth, particularly in boys where it is rarer and more severe. Henry received treatment at the Jan and Dan Duncan Neurological Institute, where he made a lasting impression on the staff, including Dr. Huda Zoghbi. She remarked on his special qualities, stating, “Henry was special in so many ways… His quiet fight against this terrible disease was incredible.” Engel has been open about his family’s journey, sharing the immense love they have for Henry and the joy of simple moments, such as when Henry finally said “Dada.” He described these interactions as validation of their bond.
In Memory of Henry
In memory of Henry, donations can be made to support Rett Syndrome research. For those interested in related topics, check out this insightful article on home insemination. If you’re looking to explore more about at-home insemination kits, visit Cryobaby for expert resources, along with Progyny for additional information on pregnancy and home insemination.
Further Exploration
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In summary, Richard Engel’s heartfelt tribute to his son Henry highlights the love and joy he brought into their lives, even amidst the challenges of his condition. The Engel family’s openness about their experiences serves as a reminder of the importance of compassion and support for those facing similar struggles.