In June 2015, Sarah Thompson and her husband took their playful 2-year-old son, Leo, to the pediatrician after a minor tumble. Although Leo had lost his usual appetite, the doctor didn’t seem overly concerned. Little did they know, their lives were about to change forever in just 24 hours.
The unusual bruising on Leo’s ear prompted the pediatrician to order blood tests to check for anemia. When the results came back showing a low platelet count, a visit to the local emergency room was recommended. After several tests, Sarah and her husband received the devastating news: their vibrant little boy, who loved playing outside and exploring, was diagnosed with acute lymphoblastic leukemia.
The couple was naturally shocked and had little time to process the news, as immediate treatment was essential. They found themselves introduced to a compassionate oncology team at a nearby hospital, who understood the emotional turmoil they were experiencing.
Within a week, little Leo underwent surgery to implant a port for chemotherapy. Like many toddlers, lying in a hospital bed was not his idea of fun. Sarah and her husband spent those nine days walking the hospital halls, trying to keep Leo entertained as his IV pole followed them. “I often found myself sneaking back to his room to cry,” Sarah reflected on those early days. “My beautiful boy—how did this happen?”
Upon leaving the hospital, the family was given a schedule for outpatient treatment. Unfortunately, Leo soon started sleeping more as his blood cell counts dropped. Within weeks, he lost his soft, sandy hair, revealing a perfectly round head that only highlighted his cherubic features.
By day 29 of his treatment, Leo’s cancer was in remission. Fast forward more than a year later, and Leo is a lively little boy with a bright smile and freshly grown hair. Although he remains in remission, the journey is far from over, as he faces two more years of chemotherapy. The couple worries about potential relapses and long-term effects of treatment, a reality they hope to avoid.
“My son, my little champion, will conquer cancer before he even enters elementary school,” Sarah said. “I remember driving to work while listening to stories from families affected by childhood cancer, thinking how they managed. Now, we are that family. Our lives changed in an instant.”
Sarah has also found support through a group of mothers who understand her pain. This group—Momcology—has been a source of strength for her, reminding her that she is not alone, even during the most isolating times. There are many important aspects of childhood cancer that everyone should be aware of to help fight this battle alongside families like hers. Here are ten key points to consider:
- Stay Positive. Avoid sharing stories about those who didn’t survive cancer; instead, offer smiles and warmth. Everyone connected to a family dealing with cancer could use some encouragement.
- The Journey Continues Beyond Chemo. Families live with the constant fear of relapse and the lingering effects of treatment, which can emerge months or years later.
- Childhood Cancer Research is Largely Underfunded. The National Cancer Institute allocates just about 4% of its budget to childhood cancer research. Children are losing their lives while waiting for advancements that desperately need financial support.
- Treatment Options Are Limited. Young children receive the same chemotherapy treatments as adults, which can be incredibly difficult for them and their families to endure.
- They Need Your Support. Families facing these challenges often feel abandoned. Even if you’re unsure what to say, simply being present can mean the world to them.
- Take Initiative to Help. Instead of asking if they need help, assume they do. Organize a meal train, drop off gas cards, or even mow their lawn. Don’t forget to extend love and attention to siblings, who also need it.
- Mental Health Matters. The emotional burden of dealing with a child’s cancer can be overwhelming. Sometimes, they simply need a break from discussing their situation.
- Avoid Unsolicited Medical Advice. If miracle cures existed, families would be seeking them out. Trust the medical professionals involved in their child’s care.
- Understand That Appearances Can Be Deceiving. A child may seem happy or healthy on the outside, but they may still be battling severe illness. Their family is aware of the reality.
- You Can Make a Difference. Each person has the power to contribute. Even small donations towards childhood cancer research can have a significant impact. Consider supporting organizations like Momcology, or donating to causes like Alex’s Lemonade Stand, St. Jude, or others.
By making a commitment to help, you can support families like Sarah’s and children like Leo. Join the fight against childhood cancer for all the kids who are currently facing their battles.
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In summary, awareness and support for families dealing with childhood cancer is crucial. From providing emotional support to advocating for better funding and treatment options, everyone can play a role in this fight.