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In a world where food allergies are often discussed, it’s hard to imagine a child whose body rejects every single thing they try to eat. This is the heart-wrenching reality for one family who is urgently seeking assistance for their son.
Meet Alex Thompson, a spirited 16-month-old baby who faces daunting challenges due to two rare medical conditions: Mast Cell Activation Syndrome (MCAS) and Food Protein Induced Enterocolitis Syndrome (FPIES). According to a GoFundMe page set up for Alex, “These disorders have rendered it impossible for him to consume food. What many of us take for granted has become a struggle for him. His body simply rejects everything he tries to eat, leading to severe and sometimes life-threatening reactions. At nearly 17 months, he is only able to rely on breast milk and occasionally enjoys ice chips.”
The urgency of his situation has escalated. One of his doctors shared their concerns with Click Detroit, stating, “Alex doesn’t have many viable options unless we can find a solution.” As a result of his condition, Alex has stopped growing, and the vital breast milk that sustains him is dwindling. Recently, he underwent surgery to place a PICC line for feeding. His aunt, Sarah Johnson, shared, “Given that Alex has no safe foods, has reacted negatively to his feeding tube, and is in the two percentile for his weight—classified as ‘failure to thrive’—the medical team, along with family members, all agree this is the best path forward for him right now.”
Currently, Alex’s medical situation is critical. He is utilizing two different feeding tubes, but they have proven unsuccessful. The family is in desperate need of soy and dairy-free breast milk.
If you are able to help, the family is seeking donations of breast milk and is also open to connecting with others who have faced similar challenges. Any assistance would be invaluable. For more details on how to contribute, you can visit the Breastmilk for Alex Donor Page. You can also learn more about Alex’s journey on the page dedicated to his cause, Alex’s Support Team.
This story exemplifies the power of community in times of need. Together, we can make a difference.
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Summary:
Alex Thompson, a 16-month-old boy, suffers from two rare medical conditions that prevent him from eating, leading to severe health consequences. His family is urgently seeking donations of soy and dairy-free breast milk to help sustain him. Community support can be instrumental in providing the necessary aid for Alex.