Your cart is currently empty!
I’m Exploring Stem Cell Options to Benefit My Child. Please Don’t Protest.
“Stem cells are life! Don’t take life away! Those embryos have rights too!” echoes the imaginary group of demonstrators in my mind as I sift through the stack of waivers, medical recommendations, and case studies spread across my kitchen table. These materials arrived in a large manila envelope, and I had to resist the urge to conceal it under my shirt while walking back home. Could my homeowners association have an issue with this? Are these documents even compliant with our neighborhood rules?
The reality is, many people don’t understand. Few read beyond the headlines or the protest signs. I certainly didn’t until I had no choice, until it became evident that my son would require stem cells to help him walk, talk, and move with ease. Cerebral palsy isn’t something you simply “overcome.” Just ask our insurance company. We do everything we can—our son has favorite therapists for physical, feeding, speech, and occupational support. He participates in equine therapy and swims in private indoor pools for aquatic therapy. We try it all, yet it still feels inadequate.
He relies on a wheelchair, a walker, and a stander, but that’s still not enough. I want him to be independent, yet I know he desires more than just a mother to guide him through life. Thus, I’m navigating the paperwork, signing waivers, and coordinating with pathologists and study coordinators at the university where we will join this stem cell study.
When people hear “stem cell,” they might conjure images of tiny blastocysts destined to become children. But let me clarify: I’m not taking anyone’s embryos. As a mother of three who went through multiple rounds of IVF and still has three frozen embryos, I would never consider using embryos from others.
The field of stem cell research has advanced significantly. We will be using stem cells derived from leftover blood cells in donor umbilical cords and placentas. We are immensely grateful to the mothers who have chosen to donate theirs for such purposes, rather than discarding them or using them in less effective ways. We need those regenerative properties for our son.
Is this the solution that will repair his damaged brain cells, transforming him into a hero like Captain America? Will it lead to a time when his wheelchair gathers dust and sign-language videos are no longer necessary? I can’t say for sure. But I do want to try; I want to give my son the best opportunity for a fulfilling life, whatever that may entail.
Yet, I find myself hesitant to share our journey into stem cell treatment because of the misconceptions that may arise—the image of defenseless embryos being dismantled and presented to us. I wish to articulate my position before others jump to conclusions. I want my explanation to be larger and clearer than the misunderstandings. I envision my own billboard of clarity.
For now, I will grapple with my manila envelope, addressing the unspoken fears that may or may not materialize—because that’s what a parent does. You confront societal judgments with the hope that by the time your child can take the reins of their life, perceptions will have shifted.
This article was originally published on May 5, 2017.
If you’re interested in exploring more about the journey of artificial insemination and home methods, check out this informative piece on artificial insemination. For those considering at-home options, Cryobaby offers kits that can be incredibly helpful. Also, for an insightful read, visit one of our other blog posts.
In summary, the exploration of stem cells for my child’s well-being is a journey filled with hope, fear, and a desire for clarity. I aim to challenge misconceptions and advocate for my son’s potential while navigating societal judgments.