At the age of 52, my sister tragically lost her life due to a false negative in her breast cancer screening. Her journey with breast health began at just 15 years old when she started experiencing benign cysts, which are often precursors to developing breast cancer. Over the years, she underwent multiple surgeries, but each biopsy consistently returned negative results for cancer. In her late thirties, her doctor recommended regular mammograms, and she adhered to this schedule diligently, despite the persistent presence of cysts that remained benign in their evaluations.
Four years prior to her death, she underwent her annual screening, which included both a mammogram and a breast ultrasound designed to identify changes and distinguish between cysts and potentially cancerous masses. Both screenings returned negative results. However, two years before her passing, during a mammogram, she noticed an irregularity in her breast and informed the technician. The screening again showed no issues, yet she sensed that something was amiss.
Months later, she developed a severe cough, and during one coughing fit, she heard a disturbing pop. The pain was unbearable, prompting her to seek medical attention, where she learned that she had fractured a rib. Instinctively, she connected this injury to the breast abnormality she had previously detected. Seeking a second opinion, she visited a different facility for another mammogram, which ultimately revealed stage-4 breast cancer that had metastasized to her ribs and even her eye. Her oncologist indicated that the cancer was slow-growing, suggesting she had likely harbored it for several years before it was diagnosed. Sadly, she passed away two years later.
This is not an isolated incident; studies indicate that roughly 20% of breast cancers may go undetected by screenings. Thus, it’s crucial for individuals to take proactive steps in advocating for their health.
Taking Charge of Your Health
Performing monthly self-breast exams is essential for identifying any abnormalities. Setting a reminder on your phone can help ensure you prioritize this practice, which takes only a few minutes and could potentially save your life. Additionally, scheduling regular clinical breast exams with a healthcare professional is vital. For those with dense breast tissue, discussing the possibility of supplemental breast ultrasounds with your doctor is advisable.
My passion for women’s health advocacy stems not only from my sister’s untimely death but also from my personal experiences with misleading information from healthcare providers. Uterine fibroids are common in my family, affecting my mother, sister, and me. My mother underwent a total hysterectomy at 31, while my sister had a myomectomy, a procedure that removes fibroids while preserving the uterus. When I turned 31, I visited a new doctor for a routine pap smear who coldly informed me that I had fibroids and needed a hysterectomy. I was devastated. As I processed the news, I sought my mother’s guidance, who then encouraged me to speak with my sister. It was then I learned about the myomectomy procedure my sister had undergone.
After doing my research, I sought a second opinion, where I discovered I had options beyond a hysterectomy. The new doctor confirmed the presence of fibroids and offered me the choice of either leaving them or opting for a myomectomy. I found relief in having a say in my treatment, and ultimately, I chose to have the myomectomy. Eight years later, when the fibroids returned, I again sought professional guidance. This time, my wonderful doctor suggested a partial hysterectomy, allowing me to keep my ovaries. By then, I was nearing 40, and I felt empowered to make informed decisions about my health.
Advococating for Yourself
Women must advocate for their own health just as fiercely as we do for others. Whether it’s during a mammogram or an annual physical, it’s vital to voice concerns and ask questions about any symptoms. Remember, doctors are human too and can make mistakes. If you feel uncomfortable with a healthcare professional, don’t hesitate to seek someone new; finding a doctor who listens to you is crucial for your wellness journey.
When faced with a diagnosis, arm yourself with knowledge. Use reliable resources such as MedlinePlus for accurate health information, but remember that self-diagnosis can be misleading—only a qualified doctor can provide a definitive diagnosis.
Let’s prioritize our health for the sake of ourselves and our loved ones.
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In summary, it’s essential to be proactive about our health, seek second opinions, and advocate for ourselves in medical settings.