March 21 marks World Down Syndrome Day (WDSD). As a mother of two young children, the days often blend together for me. Yet, I’m reminded that this meaningful date is nearing as my social media fills with calls to “rock my socks” and messages about “seeing the ability.”
Being part of the Down syndrome (DS) community brings me joy, and I believe every individual with DS deserves daily recognition. However, I have contemplated skipping the celebration this year. There are moments when I wish I could take a break from the realities of DS. For instance, one day, I entered my older child’s room to find her unzipping the pajamas of my younger child with DS. While it was a cute sight, I couldn’t help but envision a future where my elder daughter might need the same kind of care due to health issues potentially associated with her extra chromosome.
There are times I think about family vacations and feel guilt over spending money that could contribute to my younger child’s future needs. These worries are not unique to me; many parents grapple with fears about health, unfulfilled dreams, and financial burdens. However, the difference for us is that we’ve been aware since birth of the potential challenges that come with DS. This knowledge shapes our worries and the way we navigate life, offering a context that many parents do not encounter until later.
Despite the challenges, I’ve developed a deep affection for the DS community. I often find myself wishing to see more children with DS when I’m out and about, feeling an instant connection with families who share similar experiences. DS is part of my daughter Leah, but it doesn’t define her. She is the most enthusiastic, loving, and determined person I know, and her spirit touches those around her.
What once kept me up at night—worrying that she would be seen solely through the lens of her DS—has transformed into a realization that her uniqueness allows her to uplift others. In a world where some advocate for the prenatal termination of pregnancies involving DS, I take pride in allowing Leah to challenge outdated perceptions simply by being herself. My life is undeniably enriched by her presence.
This year, I’ve decided to celebrate WDSD for a very specific reason: inspiration. Just recently, I watched Leah struggle to fit blocks together, something that her younger sibling, Mia, accomplished with ease. While Mia effortlessly created a perfect structure, Leah faced challenges but remained persistent. With each successful click of a block, her excitement grew, culminating in joyous high-fives and hugs for me.
Shouldn’t we all embrace celebration more often? Every small achievement, every lesson learned, deserves acknowledgment. Leah teaches me the importance of gratitude and joy in the face of adversity. She dances freely, laughs at her own jokes, and builds her own unique creations, reminding me that happiness comes from authenticity and resilience.
So, this World Down Syndrome Day, let’s honor the spirit of individuals like Leah. Let’s celebrate the little victories, love one another despite our differences, share smiles and hugs, and craft our own narratives, regardless of external opinions. For further guidance on family planning and insemination options, check out this enlightening piece on artificial insemination kits at Make a Mom.
In summary, WDSD is a time to reflect on the beauty and challenges of life with Down syndrome, to celebrate individuality and community, and to embrace every moment with joy.